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New weight gainer shake
September 22, 2011I am constantly trying new things with Valentino to try to help with his weight gain and growth. He...
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Valentino refuses to take his enzymes
September 14, 2011I would love to be able to say that at 2 years old, Valentino takes his enzymes with every...
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Routine check up 9/13/11: wt. 10th percentile, healthy lung function
September 14, 2011Yesterday was our routine check-in/check-up at Children’s Hospital. I was able to get an appointment at the Fairfax location...
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2 year old routine check up-healthy lung function
February 17, 2011Yesterday I took Valentino to meet with Dr. Sami at Children’s Hospital for his regular check up/check in. Val...
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Winter update-1 round of steroids
January 26, 2011by Tiffany Ana We managed to get through this winter, so far, with just one round of steriods (4...
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New Treatment with Airway Clearance Vest
December 2, 2010Last week we were introduced to Valentino’s new part of his daily treatment regimine–the airway clearance vest. I met...
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Weight Gainer Pudding Recipe- Fractionated Coconut Oil
October 23, 2010I have been, again, reading great things about the benefits of medium chain triglycerides (MCT) oil for people with...
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Successful Check up at Children’s Hospital
September 23, 2010Yesterday we had a very successful check-up at Children’s Hospital. One I got past the sullen and recalcitrant receptionist,...